{"id":8102,"date":"2022-09-13T09:15:08","date_gmt":"2022-09-13T13:15:08","guid":{"rendered":"https:\/\/ccla.org\/?p=8102"},"modified":"2022-09-13T12:20:39","modified_gmt":"2022-09-13T16:20:39","slug":"privacy-and-virtual-healthcare-report-launch","status":"publish","type":"post","link":"https:\/\/ccla.org\/fr\/intimite\/lancement-du-rapport-sur-la-vie-privee-et-les-soins-de-sante-virtuels\/","title":{"rendered":"Vie priv\u00e9e et soins de sant\u00e9 virtuels\u00a0: lancement du rapport"},"content":{"rendered":"

13 septembre 2022 \u2013 L'ACLC est ravie de lancer le rapport Services de soins de sant\u00e9 virtuels au Canada\u00a0: pistes num\u00e9riques, donn\u00e9es anonymis\u00e9es et r\u00e9percussions sur la vie priv\u00e9e<\/a><\/em>. R\u00e9dig\u00e9 par une \u00e9quipe dirig\u00e9e par la chercheuse principale, la Dre Sheryl Spithoff (Women's College Hospital), et comprenant la directrice de la protection de la vie priv\u00e9e de l'ACLC, Brenda McPhail, ce rapport est une \u00e9tude qualitative de l'industrie des soins de sant\u00e9 virtuels en pleine expansion au Canada.<\/p>\n

Cette \u00e9tude, financ\u00e9e par le Programme de subventions pour contributions du Commissaire \u00e0 la protection de la vie priv\u00e9e du Canada, a examin\u00e9 le paysage de la protection de la vie priv\u00e9e sur les plateformes de soins de sant\u00e9 virtuels au moyen d'une s\u00e9rie d'entrevues qualitatives avec des employ\u00e9s d'entreprises dot\u00e9es de plateformes de soins virtuels, ainsi qu'avec des universitaires, des consultants ou des sous-traitants au sein de l'industrie, et une analyse d\u00e9taill\u00e9e des lois pertinentes sur la protection de la vie priv\u00e9e qui s'appliquent aux visites de soins de sant\u00e9 assist\u00e9es par ordinateur sur les plateformes commerciales.
\nLes principales conclusions comprennent\u00a0:
\n\u2022 De nombreuses entreprises de la plate-forme de soins virtuels (VCP) semblent s'engager dans la collecte, l'utilisation commerciale et, dans certains cas, le partage \u00e0 grande \u00e9chelle d'informations d'inscription\/d'inscription (par exemple, noms, adresses e-mail) et d'autres informations d'identification (par exemple, adresses IP) collect\u00e9es lorsque les patients interagissent avec le PCV commercial.
\n\u2022 Ces pratiques en mati\u00e8re de donn\u00e9es peuvent \u00eatre particuli\u00e8rement probl\u00e9matiques si les PCV commerciaux ne fournissent qu'un seul type de service de sant\u00e9 (par exemple, des services psychiatriques ou des services de pr\u00e9vention du VIH) car l'information peut r\u00e9v\u00e9ler la nature du probl\u00e8me de sant\u00e9 d'un patient.
\n\u2022 Certaines soci\u00e9t\u00e9s PCV cr\u00e9ent, utilisent et partagent \u00e9galement des informations de sant\u00e9 anonymis\u00e9es. La recherche montre que ces pratiques en mati\u00e8re de donn\u00e9es peuvent exposer les patients \u00e0 des dommages li\u00e9s \u00e0 la perte de confidentialit\u00e9, au micro-ciblage \u00e0 des fins commerciales et \u00e0 la discrimination contre les individus et les communaut\u00e9s marginalis\u00e9s. Cependant, les lois f\u00e9d\u00e9rales et provinciales offrent peu de protections pour les donn\u00e9es anonymis\u00e9es.
\n\u2022 Les politiques de confidentialit\u00e9 et les conditions d'utilisation de la soci\u00e9t\u00e9 VCP sont confuses, vagues et n'indiquent pas de mani\u00e8re ad\u00e9quate comment les donn\u00e9es peuvent \u00eatre utilis\u00e9es en interne ou par des tiers.
\n\u2022 De nombreux PCV commerciaux semblent exiger que les patients acceptent les utilisations commerciales de leurs donn\u00e9es avant d'acc\u00e9der aux services de sant\u00e9. En raison de la complexit\u00e9 juridictionnelle et du manque d'orientation, il n'est pas clair si cette pratique est conforme \u00e0 la lettre de la loi, mais elle est \u00e9thiquement discutable compte tenu de la sensibilit\u00e9 d'une interaction patient\/syst\u00e8me de soins de sant\u00e9.
\n\u2022 Certaines entreprises PCV utilisent des donn\u00e9es pour influencer les parcours de soins de sant\u00e9 des patients, dans le but d'optimiser l'utilisation des produits d'un partenaire commercial (par exemple, les m\u00e9dicaments ou les vaccins). Cela peut affecter la qualit\u00e9 des soins et causer des dommages aux patients.
\n\u2022 \u00c9tant donn\u00e9 que les entreprises VCP consid\u00e8rent les donn\u00e9es des patients comme un actif exclusif, les donn\u00e9es peuvent ne pas \u00eatre accessibles aux entit\u00e9s publiques et \u00e0 but non lucratif pour la recherche et l'am\u00e9lioration du syst\u00e8me de sant\u00e9.<\/p>\n

Lire le rapport complet <\/a>
\nVoir le site du projet<\/a><\/p>\n

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\u00c0 propos de l\u2019association canadienne sur les libert\u00e9s civiles<\/h3>\n
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L\u2019ACLC est un organisme ind\u00e9pendant \u00e0 but non lucratif qui compte des sympathisant.e.s dans tout le pays. Fond\u00e9 en 1964, c\u2019est un organisme qui \u0153uvre \u00e0 l\u2019\u00e9chelle du Canada \u00e0 la protection des droits et des libert\u00e9s civiles de toute sa population.<\/p>\n\t<\/div>\n<\/div>\n\n\n\n

Pour les m\u00e9dias<\/h3>\n
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Pour d'autres commentaires, veuillez nous contacter \u00e0\u00a0media@ccla.org<\/u><\/a>.<\/p>\n\t<\/div>\n<\/div>\n\n\n\n

Pour les mises \u00e0 jour en direct<\/h3>\n
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Veuillez continuer \u00e0 vous r\u00e9f\u00e9rer \u00e0\u00a0cette page<\/a>\u00a0et \u00e0 nos plateformes de m\u00e9dias sociaux. On est dessus\u00a0Instagram<\/u><\/a>,\u00a0Facebook<\/u><\/a>, Twitter<\/u><\/a> et Ciel bleu<\/u><\/a>.<\/p>\n\t<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"

13 septembre 2022 \u2013 L'ACLC est ravie de lancer le rapport Services de soins de sant\u00e9 virtuels au Canada : Pistes num\u00e9riques, donn\u00e9es anonymis\u00e9es et r\u00e9percussions sur la vie priv\u00e9e. R\u00e9dig\u00e9 par une \u00e9quipe dirig\u00e9e par le chercheur principal Dr\u2026.<\/p>","protected":false},"author":11,"featured_media":4652,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11,171],"tags":[],"class_list":{"0":"post-8102","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-privacy","8":"category-surveillance-and-privacy"},"yoast_head":"\nPrivacy and virtual healthcare: report launch - CCLA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ccla.org\/fr\/intimite\/lancement-du-rapport-sur-la-vie-privee-et-les-soins-de-sante-virtuels\/\" \/>\n<meta property=\"og:locale\" content=\"fr_CA\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Privacy and virtual healthcare: report launch - CCLA\" \/>\n<meta property=\"og:description\" content=\"September 13, 2022–CCLA is delighted to launch the report Virtual Healthcare Services in Canada: Digital Trails, De-Identified Data and Privacy Implications. 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