{"id":14452,"date":"2022-09-13T09:15:08","date_gmt":"2022-09-13T13:15:08","guid":{"rendered":"https:\/\/staging.ccla.org\/non-classe\/confidentialite-et-soins-de-sante-en-ligne-presentation-dun-rapport\/"},"modified":"2026-06-11T10:01:45","modified_gmt":"2026-06-11T14:01:45","slug":"confidentialite-et-soins-de-sante-en-ligne-presentation-dun-rapport","status":"publish","type":"post","link":"https:\/\/ccla.org\/fr\/vie-privee\/confidentialite-et-soins-de-sante-en-ligne-presentation-dun-rapport\/","title":{"rendered":"Confidentialit\u00e9 et soins de sant\u00e9 en ligne : pr\u00e9sentation d’un rapport"},"content":{"rendered":"

13 septembre 2022 — L’ACLC est ravie de publier le rapport Services de sant\u00e9 virtuels au Canada : traces num\u00e9riques, donn\u00e9es anonymis\u00e9es et implications en mati\u00e8re de protection de la vie priv\u00e9e<\/a><\/em>. R\u00e9dig\u00e9 par une \u00e9quipe dirig\u00e9e par la chercheuse principale, la Dre Sheryl Spithoff (Women’s College Hospital), et comprenant Brenda McPhail, directrice de la protection de la vie priv\u00e9e \u00e0 l’ACLC, ce rapport constitue une \u00e9tude qualitative du secteur des soins de sant\u00e9 virtuels en pleine expansion au Canada. <\/p>\n

Cette \u00e9tude, financ\u00e9e par le Programme de subventions pour les contributions du Commissaire \u00e0 la protection de la vie priv\u00e9e du Canada, a examin\u00e9 le contexte en mati\u00e8re de protection de la vie priv\u00e9e sur les plateformes de soins de sant\u00e9 en ligne \u00e0 travers une s\u00e9rie d’entretiens qualitatifs men\u00e9s aupr\u00e8s d’employ\u00e9s d’entreprises exploitant de telles plateformes, ainsi qu’aupr\u00e8s d’universitaires, de consultants ou de prestataires tiers du secteur, et une analyse d\u00e9taill\u00e9e des lois applicables en mati\u00e8re de protection de la vie priv\u00e9e qui s’appliquent aux consultations m\u00e9dicales en ligne sur des plateformes commerciales.
\nParmi les principales conclusions, on peut citer :
\n\u2022 De nombreuses entreprises proposant des plateformes de soins virtuels (VCP) semblent proc\u00e9der \u00e0 la collecte g\u00e9n\u00e9ralis\u00e9e, \u00e0 l’utilisation \u00e0 des fins commerciales et, dans certains cas, au partage des informations d’inscription (par exemple, noms, adresses e-mail) et d’autres donn\u00e9es d’identification (par exemple, adresses IP) recueillies lorsque les patients interagissent avec ces plateformes commerciales.
\n\u2022 Ces pratiques en mati\u00e8re de donn\u00e9es peuvent s’av\u00e9rer particuli\u00e8rement probl\u00e9matiques si les prestataires de soins de sant\u00e9 priv\u00e9s ne proposent qu’un seul type de service de sant\u00e9 (par exemple, des services psychiatriques ou des services de pr\u00e9vention du VIH), car ces informations peuvent r\u00e9v\u00e9ler la nature des probl\u00e8mes de sant\u00e9 d’un patient.
\n\u2022 Certaines entreprises du secteur des soins de sant\u00e9 virtuels (VCP) cr\u00e9ent, utilisent et partagent \u00e9galement des donn\u00e9es de sant\u00e9 anonymis\u00e9es. Des \u00e9tudes montrent que ces pratiques en mati\u00e8re de donn\u00e9es peuvent exposer les patients \u00e0 des risques li\u00e9s \u00e0 la violation de la vie priv\u00e9e, au microciblage \u00e0 des fins commerciales et \u00e0 la discrimination \u00e0 l’encontre des personnes et des communaut\u00e9s marginalis\u00e9es. Cependant, les l\u00e9gislations f\u00e9d\u00e9rales et provinciales n’offrent que peu de protections pour les donn\u00e9es anonymis\u00e9es.
\n\u2022 Les politiques de confidentialit\u00e9 et les conditions d’utilisation de la soci\u00e9t\u00e9 VCP sont confuses et vagues, et n’expliquent pas clairement comment les donn\u00e9es peuvent \u00eatre utilis\u00e9es en interne ou par des tiers.
\n\u2022 De nombreux partenariats patient-entreprise (VCP) semblent exiger des patients qu\u2019ils consentent \u00e0 l\u2019utilisation commerciale de leurs donn\u00e9es avant de pouvoir acc\u00e9der aux services de sant\u00e9. En raison de la complexit\u00e9 juridique et du manque de directives, il est difficile de d\u00e9terminer si cette pratique est conforme \u00e0 la lettre de la loi, mais elle est discutable sur le plan \u00e9thique compte tenu du caract\u00e8re sensible de la relation entre le patient et le syst\u00e8me de sant\u00e9.
\n\u2022 Certaines entreprises du secteur des soins de sant\u00e9 (VCP) utilisent des donn\u00e9es pour influencer le parcours de soins des patients, dans le but d\u2019optimiser l\u2019adoption des produits d\u2019un partenaire commercial (par exemple, des m\u00e9dicaments ou des vaccins). Cela peut nuire \u00e0 la qualit\u00e9 des soins et causer des pr\u00e9judices aux patients.
\n\u2022 \u00c9tant donn\u00e9 que les entreprises du secteur VCP consid\u00e8rent les donn\u00e9es des patients comme un actif exclusif, il se peut que ces donn\u00e9es ne soient pas mises \u00e0 la disposition des organismes publics et \u00e0 but non lucratif \u00e0 des fins de recherche et d’am\u00e9lioration du syst\u00e8me de sant\u00e9.<\/p>\n

Lire le rapport complet <\/a>
\nConsultez le site web du projet<\/a><\/p>\n

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13 septembre 2022 — L’ACLC est ravie de publier le rapport Services de sant\u00e9 virtuels au Canada : traces num\u00e9riques, donn\u00e9es anonymis\u00e9es et implications en mati\u00e8re de protection de la…<\/p>\n","protected":false},"author":11,"featured_media":12676,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[295,271],"tags":[],"class_list":["post-14452","post","type-post","status-publish","format-standard","has-post-thumbnail","category-surveillance-et-vie-privee","category-vie-privee"],"yoast_head":"\nConfidentialit\u00e9 et soins de sant\u00e9 en ligne : pr\u00e9sentation d'un rapport - CCLA<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/ccla.org\/fr\/vie-privee\/confidentialite-et-soins-de-sante-en-ligne-presentation-dun-rapport\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Confidentialit\u00e9 et soins de sant\u00e9 en ligne : pr\u00e9sentation d'un rapport - 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